Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care.
It is important that we, the NHS, can use this information to plan and improve services for all patients. We would like to link information from all the different places where you receive care, such as your GP, hospital and community service to help us provide a full picture. This will allow us to compare the care you received in one area against the care you received in another, so that we can see what has worked best.
Information such as your postcode and NHS number, but not your name, will be used to link your records in a secure system, so your identity is protected. Information which does not reveal your identity can then by used by others, such as researchers and those planning health services, to make sure we provide the best possible care for everyone.
How your information is used and shared is controlled by law and strict rules are in place to protect your privacy.
We need to make sure that you know that this is happening and the choices you have.
Benefits of sharing information
Sharing information can help improve understanding, locally and nationally, of the most important health needs and the quality of the treatment and care provided by local health services. It may help researchers by supporting studies that identify patterns in diseases, responses to different treatments and potential solutions.
Information will also help to:
· Find more effective ways of preventing, treating and managing illness;
· Guide local decisions about changes that are needed to respond to the needs of local patients;
· Support public health by anticipating risks of particular diseases and conditions and help us to take action to prevent problems;
· Improve the public understanding of the outcomes of care, giving them confidence in health and care services; and
· Guide decisions about how to manage NHS resources fairly so that they can best support the treatment and management of illness for the benefit of patients.
What will we do with the information?
We will only use the minimum amount of information we need to help us improve patient care and the services we provide.
We have developed a thorough process that must be followed before any information can be shared. We sometimes release information to approved researches, if this is allowed under the strict rules in place to protect your privacy. We are very careful with the information and we follow strict rules about how it is stored and used.
We will make sure that the way we use information is in line with the law, national guidance and best practice. Reports that we publish will never identify a particular person.
Do you have a choice?
Yes. You have the right to prevent confidential information about you from being shared or used for any purpose other than providing your care, except in special circumstances. If you do not want information that identifies you to be shared outside your GP practice, ask us to make a note of this in your medical records. This will prevent your confidential information being used other than where necessary by law, (for example if there is a public health emergency).
Do I need to do anything?
If you are happy for your information to be shared you do not need to do anything. There is no form to fill in and nothing to sign and you can change your mind at any time. If you have any concerns please speak to the Practice.
If you wish to object to your data being shared you can download this form and return it to the Practice.
Where can I get more information?
For more information, including list of frequently asked questions (FAQ’s), please go the website at www.nhs.uk/caredata. You can also get further information from the website at www.hscic.gov.uk.